The Project of Me

Sixteen years ago, yesterday, May 31, 2009, I had two unexpected seizures, was diagnosed with viral encephalitis (a brain infection), and admitted to Children’s Hospital for 18 days. For the next 8 years, I lived a normal life, free of seizures and side effects. I thought my story was one of miraculous healing. But in 2017, I started having seizures again and was diagnosed with epilepsy. Today, my seizures are controlled. It’s been 2 ½ years since my last one. I used to have a difficult time classifying myself as disabled because of that. But recently, I recognized that even though I don’t have seizures daily, epilepsy still affects my daily life. I have taken anti-epileptic medication daily for the past 8 years. I make sure to carry my rescue medication with me everywhere I go. I pack an extra set of underwear in my carry-on when I fly just in case I have a seizure on the plane and wet myself (it happened once). I’m prepared to lose my driver’s license at any time in case of a break...